Courtney Block is deaf due to a rare condition called pontine tegmental cap dysplasia. She was born with neurological problems, deafness, seizures and progressive vision loss. Less than 50 people in the world are known to have the disorder which causes both physical and cognitive issues, said her father, Ken Block.

At 37, she may also be the oldest known person with it. A 2011 study in the Orphanet Journal of Rare Diseases notes that only 19 patients had been reported at that point and, at that time, only one had reached the age of adolescence.

But on this day, Block, who also has partial vision, isn’t thinking of any of that. She has a game to play.

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